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Reply To: Navigation is still hard as we support young adults

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#25505
JenCan
Participant

Solidarity to you all. We began navigating systems in 1997, and boy oh boy has it been a journey! I think we can all say that we own the title of case manager when it comes to our own children. For us, adult services has been much easier to navigate, but I believe that has a lot to do with the fact that mom is now a seasoned veteran advocate, and because there just aren’t as many programs involved. My son has complex communication challenges, so one of the most important things we’ve done since he became an adult was making sure that I have the legal right to speak with his providers, and to facilitate the organization and management of his care. The school system was extremely traumatizing for my son, so adult life has greatly reduced the amount of stressors he has to deal with. Like you Suzanne, I also feel I am a much better advocate for my son than I am for myself. It feels good to know that we can support each other on this forum. Blessings to you all!

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